Global Genes Overview
Contact top employees from
Global Genes
Summary
Empowering the Next Generation Rare Disease Advocate.
Global Genes and RARE-X officially merged into one organization December 2022 under the name Global Genes. Both organizations have be...Show more
Global Genes industries
Nonprofit Organization Management
Headquarters Location
Global Genes Employees Size
10-50 employees
Specialties
Rare Disease Awareness, Public and Physician Education, Supporting Research Initiatives, Patient Advocacy, Rare Disease, Undiagnosed Patient Program, Education, Genetics, Events, Programs, Resources, Connect, Empower, Inspire, FoundationAlliances, CorporateAlliances
Founded
2009
Traffic on Global Genes Company’s website
Global Genes Employees Turnover 2 quarter 2025
Number of employees switched from or switched to
6Total number all of employee turnover
< 2joined positions
< 4joined positions
Current employees switched from
Ex-employees switched to
Number of employees by department
2Total number all of employee turnover
< 1Clinical Research Fellow
< 1Health Informatics Engineer
Ex-employees positions
In Company
Clinical Research Fellow
1
Health Informatics Engineer
1
In New Company
1
Health Informatics Engineer
1
Research and Data Governance Lead
1
Rare Compassion Program
1
Doctoral Internship, Scientific Programs
1
RARE Compassion Program - Student Participant
Clinical Research Fellow
1
Health Informatics Engineer
1
Health Informatics Engineer
1
Research and Data Governance Lead
1
Rare Compassion Program
1
Doctoral Internship, Scientific Programs
1
RARE Compassion Program - Student Participant
1
Contact top employees from
Global Genes
Cynthia Kuan
Director, Program Operations
Mackenzie Abramson
Senior Manager, Community Engagement & Communications
Shruti Mitkus PhD
Director of Patient Services and Community Education
Alexander Farnum
Health Informatics Engineer
Michele Eicher Whiteside
Director Programs & Events
Frieda Hernandez
Engagement Program Manager
Karmen Trzupek
Sr Director of Scientific Programs
Lauren Alford
Sr Director, Community Engagement & Communications
Katherine Lim
Associate Director Marketing Communications
Charlene Son Rigby
Chief Executive Officer
Kerry Hughes
Volunteer Advocate
Barry Weber GDPR
Global Genes - CISO and DPO
Daniel DeFabio
Director of Community Engagement and Education
lisa Moreno Dickinson
writer/Bloger
Kristin Soto
Associate Director of Development
Victoria Weiss
Senior Director, Finance
Katelyn Hobbs
Senior Manager, Community Engagement
Nicholas Ehly
Associate Data Analyst
Geoffrey Beek
Associate Director, Program Operations
Nicole Boice
Chief Mission Officer
Isaac Okello
Global Genes Leadership Council Member
Syrine Ben Ayed
Intern @ Global Genes, Rare-X
Lisa James
Director, Business Process & Insights
Jacob Garcia
WordPress Developer
Lakeia Nard
Global Gene Leadership council member
Sydney Hedgeland
Rare-X Community Engagement Associate
Hannah Hubner
Genetic Counseling Intern
Michele Eicher Whiteside
Director, Programs & Events
