

FSHD Society Information
Contact top employees from
FSHD Society
Summary
FSHD Society has been in the industry for 35 years. The company currently specializes in the Nonprofit Organization Management area. Its headquarters is located at US. The estimated number of employees - 52. To connect with FSHD Society employee register on SignalHire.
Organization Website | fshdsociety.org |
Phone Number | (781) 301-6060 |
Industries | |
Headquarters Location | Massachusetts, US |
Employees Size | 10-50 employees |
Specialties | Medical research funding, Fundraising and development, Patient education, Advocacy, Rare disease, muscular dystrophy, neuromuscular, clinician education |
Founded | 1991 |
Employees Turnover 4 quarter 2025
Number of employees switched from or switched to
Total number all of employee turnover
Length of Employment
Employee tenure at FSHD Society shows a diverse range of experience levels:
8% have been with the company for less than 1 year17% for 1–2 years17% for 3–4 years25% for 5–7 years17% for 8–10 years17% have over 11 years of service at FSHD SocietyEx-employees positions
In Company
In New Company
Contact top employees from
FSHD Society
Nicole Collier
Development Coordinator
Taylor Eyerman
Operations Coordinator
Mark Stone
President & Chief Executive Officer
Ken Kahtava
Chief Operating Officer
Jessica Wright
Director, National Fundraising Events
Ashley Ferreira
Director of Education
Kimberly Shanley
Manager of Fundraise Your Way and Special Events
Carolyn Lloyd
Chief Development Officer
Beth Johnston
Chief Community Engagement Officer
Aaron Calderon
Senior Salesforce Administrator
Krista Giangregorio
Director of Operations
Jess Carter
Director of Operations
Mark Christman
Western PA Chapter Director
Anna Gilmore
Director of Patient Engagement
Colette Wheeler
Activist / Marketing Consultant
Jenny Gast
National Director, Chapter Programs (Operations)
Amanda Hill
Director / Senior Director of Research
June Kinoshita
Senior Director of Research and Education
Kayleigh Worek
Program Manager
Frank Kolakowski
Member Board of Directors and Scientific Advisory Board
William Sarraille
Special Counsel
Ellen Hannan
Member Board of Directors
Lucienne Ronco
Chief Scientific Officer
Doris Walsh
Office Manager/Patient Liaison
Similar Companies
FAQ
FSHD Society operates in the Voluntary Sector industries. More details can be found on the official website: fshdsociety.org.
The headquarters of FSHD Society are located in Massachusetts, United States.
You can contact FSHD Society by phone at (781) 301-6060.
FSHD Society currently employs 10-50 people.
Data Privacy
GDPR COMPLIANT
SignalHire complies with the General Data Protection Regulation (GDPR). SignalHire follows GDPR requirements, including but not limited to rights of data subjects to access, correct, or delete their personal information and supports the right to be forgotten.
CCPA COMPLIANT
SignalHire is CCPA-compliant and provides California residents the right to know, access, opt out, and request deletion of their personal data.





