Cure SMA: Detailed Company Information & Corporate Profile
Summary
Founded in 1984, Cure SMA operates from Schaumburg, Illinois, with a team of 10‑50 employees generating $10M‑$50M in revenue. The organization focuses on the voluntary sector and dedicates its resources to advancing care for individuals affected by spinal muscular atrophy (SMA) and other rare diseases.
Cure SMA’s core activities span basic research, clinical trials, and direct patient services through a care center network. It also provides community support programs, educational events, and fundraising initiatives to sustain and expand its impact on health care delivery and policy advocacy.
Key leaders include President Rickk Montoya of the Southern California Chapter; Senior Vice President Jesse Aynes for Development & Marketing; Vice President Maynard Friesz overseeing Policy & Advocacy; Chief Financial Officer Debora Pellicano; and Director of Clinical Programs Jennifer Mangers, among others.
| Cure SMA Website | curesma.org |
| Phone Number | 800-886-1762 |
| Industries | |
| Cure SMA Headquarters Address | 50 E Commerce Dr, Schaumburg, Illinois, 60173 US |
| Company Size | 10-50 employees |
| Specialities & Services | Spinal Muscular Atrophy, SMA, Rare Disease, Rare Diseases, Healthcare, Health Care, Research, Basic Research, Clinical Research, Clinical Care, Clinical Resources, Care, Care Center Network, Community Support, Support Programs, Pharmaceutical , Events, Educational Events, Fundraising , Fundraising Events |
| Founded | 1984 |
| Estimated Annual Revenue | $10M - 50M |
| Updated: | 2026-10-20 |
Cure SMA Org Chart
Chief Executive Officer
C-Level
Estimated Website Traffic
The chart shows a decline in traffic to the curesma.org website. In September, traffic decreased to 59773, compared to 60759 in the previous month. The highest traffic in 2026 was recorded in March, reaching 67963 visits.
Workforce Turnover
Number of employees switched from or switched to
Departmental sample breakdown
Length of Employment
Cure SMA's workforce includes employees across a wide range of tenure levels.
9% have been with the company for 1 to 2 years9% have been with the company for 3 to 4 years22% have been with the company for 5 to 7 years17% have been with the company for 8 to 10 years43% have been with the company for more than 11 years
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Cure SMA Corporate Information: FAQ
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